Welcome to the Home-Based Care Survey

This survey is part of a collaborative research project led by the Care Economy Research Institute (CERI) at La Trobe University, in partnership with The Asia Foundation Malaysia, Australia, and MyAgeing at University Putra Malaysia (UPM). The study explores how home-based care is currently provided in Malaysia and Australia, in response to changing demographics and increasing care needs.

We invite you to take part in a 10-20 minute survey to share your experiences with home-based care. For this study, home-based care refers to support provided to individuals in their own homes. This may include services delivered by nurses, allied health professionals (e.g. physiotherapists, occupational therapists, podiatrists, allied health assistants), home care workers (e.g. personal care and meals), and domestic assistants (e.g. cleaning). It also includes people providing support outside the home, such as transport to appointments, help with shopping, or social activities like coffee clubs. The care provided could be formal (paid) or informal (unpaid).

The survey focuses on care for older adults-defined as those aged 65 and over, or 55 and over for Aboriginal and Torres Strait Islander peoples.

If you are 18 years of age or older and are either a formal care provider (paid) or an informal caregiver (unpaid) or you are an older adult who is receiving informal or formal care, you are eligible to participate in this survey. 

Your participation is voluntary, and all responses are anonymous and confidential. The data collected will be analysed and used to identify gaps in the home-based care system, helping to inform future research and policy reforms. A summary of the findings will be shared publicly on the La Trobe University website, presented at conferences, and may be published in peer-reviewed journals.

While we do not anticipate emotional distress from participating, we acknowledge that some questions may be sensitive. If you feel affected, please seek support from your usual networks or contact the project manager, Jennifer Boak, at j.boak@latrobe.edu.au.

You may exit the survey at any time. Any responses provided up to that point will be retained and may be used in the analysis. If you have concerns about this, please contact j.boak@latrobe.edu.au.

This project has been approved by the La Trobe University Human Ethics Committee (HEC25290). No funding has been received, and the researchers declare no conflicts of interest.

Before you begin, please note the following:

  • Your responses will remain anonymous and confidential.
  • Aggregated data may be used for research and advocacy purposes.
  • You may discontinue the survey at any time; data collected up to that point will be retained.
  • Personal and health information will be handled in accordance with privacy laws and the Health Records Act 2001 (Vic).
  • Your data will be:
    • Collected, stored, and published in ways that do not identify you.
    • Retained for five years after project completion, then securely destroyed.
    • Managed in accordance with La Trobe's Research Data Management Policy.

By continuing with the survey, you provide implied consent to participate.

At the end of the survey, you may choose to provide identifiable information via a separate link for future research purposes. This information will be stored separately and will not be linked to your survey responses.

Thank you for contributing to this important research. Your insights will help shape the future of home-based care for older people.

For questions or concerns:

Thank you for participating!

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